Presentations and Publications
National Summit on Adverse Childhood Experiences (RWJF Sponsored: Invited Presenter): National and State Data on ACE Risk and Resilience: The Call for Mind/Body Interventions. Philadelphia, PA, May 2013. http://www.instituteforsafefamilies.org/national-summit-presentations
Adverse child and family experiences and toxic stress have been shown to affect child health and development, including brain development, physical and mental health and development of adult disease. Given the high prevalence of adverse child and family experiences and emerging evidence to support mind-body interventions, it is imperative to integrate relationship centered care and mind-body methods.
The National Survey of Children’s Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN) Use in Pediatric Practice and Research
Pediatric Academic Societies Annual Meeting (Workshop Leader): Using the National Survey of Children’s Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN) in Pediatric Practice and Research. Washington, D.C., May 5, 2013.
The Children with Special Health Care Needs (CSHCN) Screener has been used as an efficient and valid method to identify children with chronic physical, mental, behavioral or other conditions who require a type or amount of health and related services beyond that required by children generally. Physicians, health plans, and emerging ACOs can utilize the CSHCN Screener to identify a robust group of individuals who are homogenous as to chronicity and complexity of health needs and elevated costs of care, and therefore likely to most benefit from care coordination and health and quality improvement strategies.
Pediatric Academic Societies Annual Meeting (Paper Presentation): Health Care Quality for Children: The Position of Autism Spectrum Disorder. Washington, D.C., May 6, 2013.
Recent research continues to demonstrate rising autism spectrum disorder (ASD) prevalence among US children. Children with ASD are more prone than both other children with special health care needs (CSHCN-ASD) and other children (Non-CSHCN) to experience adverse health impacts in addition to family financial and employment burden. Consequently, ongoing efforts to improve the technical quality of health care for children with ASD are imperative to advancing care equity among US children.
Pediatric Academic Societies Annual Meeting, Academic Pediatric Association Complex Care Special Interest Group Meeting (Invited Presenter): Identifying Children with Medical Complexity: What Do We Know and Where do We Need to Go? Washington, D.C., May 6, 2013.
Children with medical complexity (CMC) have medical fragility and intensive care needs that are not easily met by existing health care models. In this article, we present a definitional framework of CMC that consists of substantial family-identified service needs, characteristic chronic and severe conditions, functional limitations, and high health care use. We explore the diversity of existing care models and apply the principles of the chronic care model to address the clinical needs of CMC. And finally, we suggest a research agenda that uses a uniform definition to accurately describe the population and to evaluate outcomes from the perspectives of the child, the family, and the broader health care system.
Pediatric Academic Societies Annual Meeting (Poster Presentation): National and State Findings on Shared-Decision making for Children with Special Health Care Needs: Prevalence, Variations and Psychometric Properties. Washington, D.C., May 6, 2013.
Shared decision making (SDM) is a critical component of patient engagement and family-centered care. It is recognized by the American Academy of Pediatrics and the US Department of Health & Human Services as a national quality measurement priority. Shared decision making is associated with positive experiences seeking care, fewer unmet needs but varies widely across states and is an integral component of quality of health care for patients.
Getting the Patient Voice into the Electronic Medical Record: Using Parent-Completed Pre-Visit Tools to Customize and Improve Well Child Care
Academic Pediatric Association 3rd Annual Advancing Quality Improvement Science for Children’s Healthcare Research (APA QI) Conference: Getting the Patient Voice into the Electronic Medical Record: Using Parent-Completed Pre-Visit Tools to Customize and Improve Well Child Care. Washington, D.C., May 3, 2013.
Obtaining patient voice into Electronic Medical Records (EMR) is vital to customize and improve well child care. The online tool designed to integrate parent-responses into EMR, the Well-Visit Planner (WVP), was evaluated using qualitative and quantitative metrics to determine its effectiveness on three pediatric offices.
The Relationship Between Complementary and Alternative Medicine and Conventional Health Care Access, Expenditures and Experiences Among US Children
2012 CityMatCH Urban MCH Leadership Conference & Maternal and Child Health Epidemiology (MCH-EPI) Conference (Presenter): “The Relationship Between Complementary and Alternative Medicine and Conventional Health Care Access, Expenditures and Experiences Among US Children,” San Antonio, TX, December 2012.
The Relationship Between Complementary and Alternative Medicine (CAM) and Conventional Medicine (CM) was calculated to determine the prevalence of CAM use among children with chronic conditions and special health care needs; to assess the association between CAM use and conventional medical care (CM), utilization, access, parent’s experience and CM expenditures; and to evaluate the validity and sufficiency of available population based data to address priority integrative pediatrics health services research questions.
Framing Systems of Care for Children with Special Health Care Needs for Optimal Health Development Over the Life Course
American Public Health Association (APHA) Annual Meeting and Expo (Presenter): “Framing Systems of Care for Children with Special Health Care Needs for Optimal Health Development Over the Life Course: Implications and Priorities for Practice, Policy, and Research,” San Francisco, CA, October 2012.
Explores the growing complexity of health care needs and functional impacts Children with Special Health Care Needs (CSHCN) and their families’ experience. The enhanced vulnerability of CSHCN in the context of the health care system suggests the need for a life course approach along with focusing on families, communities and health promotion.